Ruben was diagnosed with unilateral RB on December 16, 2011, he was 18 months old at the time. Thankfully after all the CTs and MRIs and blood work; it was all contained in the left eye and had his left eye enucleated on 12/28/11. Everything had hit us like a truck, but we are thankful that he was able to have the eye removed and didn't need chemo or radiation. He has EUAs every 6 months now and so far everything has been great. he sees Dr. Leonard Joffe and Dr Reid Schindler, they are awesome!
Ruben is now 4 years old. and in August he started his 2nd year in preschool, he loves it! Ruben lives as normal of a life as any 4 year old; He loves story time and reciting his colors as well as your good-old fashioned Super Hero or Disney movie, or Arizona Wildcat football game!. Ruben absolutely LOVES to dance, he can shake it to any tune! he has also recently learned to take out and put his prosthetic back in, so as you can imagine, that has been interesting at dinner, school, and the grocery store!
Ruben is a very smart and incredibly amazing kid, he has been nothing but awesome through all of this. he's definitely our little hero!
RBAZ isn't just an organization, we are a family.